May 12th marks the day on which Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM) are actually recognised. For those who don’t know what either of those conditions are, they’re multifaceted conditions which cause extreme (chronic) fatigue and also muscular/joint pains, which cause impact on daily life and inability to carry out seemingly benign or simple tasks. Everyone presents with different symptoms, different levels of pain and ability – they’re most certainly conditions on sliding scales, and it’s a scale that can slide in either direction at any time it chooses.
For anyone who doesn’t know, I have ME – Myalgic Encephalopathy – sometimes called Chronic Fatigue Syndrome. I have blogged about this in the past at various points but it seems all the more poignant now as I’m in a relapse which is, pretty much, ruining my life right now. Yes, I sound melodramatic but how this disability impacts on me, it does ruin things. I don’t often like to be a negative person, I’m a relatively positive person, I have to be. But sometimes, it all gets on top of me and rather than internalise I thought I would try and explain briefly what it is and how it affects me. So, if you want to know carry on reading, if not then you don’t have to!