Rating – 5*
Putting my feelings for this book in to coherent sentences is going to be hard. This is a book I’ve been aware of long before I started my degree, and I really wish I had read it prior to university because it would have given me a different aproach to my day to day lab work. I knew her name, which is more than many scientists did, but when dealing with cell cultures it’s sometimes difficult to remember that every cell came from somewhere, and in many cases came from someone. More importantly, the immortal cell line – HeLa – which came from her tumor has changed the lives of everyone alive today. Yet, she was unknown until 20 years after the biopsy was taken, and she doesn’t get thanks for that.
This book was so much more than a book about cells – I’ve read many of books about cells and this wasn’t comparable to any of them. This is the biography of a woman science – the world – needs to remember the name of. Henrietta Lacks. Henrietta Lacks was a young mother of 5 when she was diagnosed with cervical cancer, and unknown to her or her family the doctor took two biopsies that day. One would diagnose her with cancer, the other would go on to be the most prolific cell line in history. HeLa cells have gone on to change the world – they were instrumental in the development of medical treatments such as the polio vaccine, they’ve been in to space, they’ve changed the face of science and medicine to what we now know it. But this is a book about the woman behind that immortal cell line; the mother, sister, wife, cousin, and friend. It’s a book full of compassion and it made me cry because I know just how instrumental this woman has been in my life.
The story in these pages is not an easy read. It covers race, religion, discrimination of many kinds, the American medical system (which to this day horrifies me), medical ethics, rights to our bodies and tissues – what it covers seems to be endless. There is also a brief touch on mental health in the book, due to one of Henrietta’s children – Elsie – suffering from epilepsy and being institutionalised at a very young age. While we never know the exact details of how the poor girl was treated while in the ‘care’ home, the general opinion on what was likely to have occurred sent a shiver down my spine. But for me, the thing which gave me most hope, was that education is power. Deborah, one of Henrietta’s children, armed with a dictionary and google, was determined to learn as much about her mother and what her cells have done for the world as possible.
Rebecca Skloot is a fantastic journalist who became fascinated by the story of the woman behind the cells when she was in college. She knew from a reasonably early point in her career that this was the book she wanted to write because the more she understood, the more she wanted to know about Henrietta. She handles this book with extreme grace and compassion, with very much overdue respect and gratitude to the family in every page of this book.
Honestly, this book is one that will stay with me for a lifetime. It’s not your typical, stodgy non-fiction as it’s more about the woman, not the science. It’s approachable and informative, and a very much deserved winner of the Wellcome Prize in 2010. I cannot recommend it highly enough.
I leave you on this note:- HeLa cells, which were taken from the tumour on Henrietta Lacks’ cervix – were found to contain human papillomavirus 18 (HPV-18). HPV-18 is one of the strains of HPV which can cause cervical cancer, and in 2006 the cell line from Henrietta was used to develop a vaccine which is now given to all female school children in the UK (and many countries worldwide) which has, on estimate, cut cervical cancer cases by two thirds in 10 years. It’s by no means a cure, but it reduces the risk. That, for me, is something I feel both Henrietta (and her family) should be very proud of.