There is no denying that this book is hard hitting, and one which has left a lasting imprint on me. It isn’t a book I would have picked up had it not been for the Wellcome Prize shortlisting of it. This book is a very personal insight in to the AIDS epidemic of the 1980s.
It is by no means an easy read, both in content and style. The writing is quite dense, and it is long and incredibly detailed. I persevered with it, in spite of it being quite difficult to work through at times because I knew what I was reading was important. It was a voice I hadn’t heard before. I’m fortunate enough to have grown up in a world where AIDS and HIV is part of everyday understanding, we’re taught about it in school; sexual health is taught year in, year out and we get letters posted to us from our doctors surgery urging us to get tested for STIs (my school even had chlamydia tests in toilets, and numbers and addresses for the sexual health/family planning clinics in the area) I can’t even imagine the horrors and the fear that people felt in a world where there wasn’t an answer. Where there wasn’t that understanding, even on a small scale. This book barely scrapes the surface of that fear I can only imagine feeling.
However, as I said, this book is quite dense. There are so many individual stories in here, stories of so many people and every one of them is important, but the book felt cramped and crowded. Every voice is important, but for me there were just too many to be able to focus in on what this book is ultimately about – the discovery of the HIV virus. For me, this wasn’t a book about popular science, so going in to it I had a slightly warped perception of what lay before me. The science when it showed up was interesting, but the in depth analysis of clinical trials did have me skimming through after a while.
For me, as someone who identifies on the LGBTQ+ spectrum, this is a very important book to read. Reading this made me realise just how damn lucky I am. Reading this brought me to tears, it devastated me in parts.
I wish there were an abridged version, or that the book was in two parts maybe – the scientific side, and the more personal side which tells the stories of the people in this book – I understand they overlapped significantly, but for me this was a bit disjointed in parts because of the juxtaposition of the two factors.
This is a very, very important book to read. There is no denying that. I’m glad to have read it, and I know a couple of people I will recommend this to. But it’s not an easy read by any stretch of the word, it’s intense in both the content and the sheer denseness of the writing and I can’t quite bring myself to give this 5* because I didn’t love it like I did some of the others in the shortlist.